What else we provide?
Search
Platform where individuals with the same rare diseases can share the kind of medications they are taking.
Exchange
Platform where patients with the same rare disease can exchange and discuss about their disease and treatments.
Connect
Platform for telemedicine where patients and specialists gather.This will create opportunities to connect.
How to use it?
Record
After your regular medical check, let’s record.
Mutter
As mutter to oneself, let’s talk one another a lot.
Progress
Look back on how far you have come by keeping track of your progress.

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Privacy Policy
This privacy policy has been compiled to better serve those who are concerned with how their ‘Personally identifiable information’ (PII) is being used online. PII, as used in US privacy law and information security, is information that can be used on its own or with other information to identify, contact, or locate a single person, […]
Recently, we have incorporated these diseases into our app.
Langerhans Cell Histiocytosis Huntington’s disease Sjogren’s Syndrome Mixed connective tissue disease Transverse Myelitis Ehlers-danlos Pancreatitis Hashimoto’s Encephalopathy Moyamoya disease Multifocal Motor Neuropathy Fibromyalgia Inflammatory bowel disease Chronic fatigue syndrome if applicable,could you answer this questionnaire. It can be added another rare disease by answered this questionnaire. https://docs.google.com/forms/d/1MNATkdYA03vWsMDro3iPR-Kr_7rhXq7fhoAf0Qqx6L8/viewform If we can get 200 people with the […]
Why we develop
Besides being the founder of Dr.NEAR, I was diagnosed with a rare disease called Langerhans Cell Histiocytosis years ago. I have been fighting against my disease and am on chemotherapy.
There are so many other people who struggle with rare diseases in the world, but I have never met another person with a rare disease except for through the web.We would love for you to help us spread the word and connect people with rare diseases.

Our solution would answer these issues by :
- collecting and providing data about rare diseases, and centralising the information in one place.
- providing near real time feedback about old, and most importantly, new treatments for rare diseases.
- enabling patients suffering from rare diseases to easily research about their condition and possible treatments even before finding a specialised doctor.
- creating a mean for specialists and patients to communicate easily (advice etc.).
- making effective data accumulation and discover the therapy that suits an individual by performing data mining.