Different rare diseases
Affected by rare diseases
More office visits to diagnose (%)
Medicines in development for rare disease
Why we develop
Besides being the founder of Dr.NEAR, I was diagnosed with a rare disease called Langerhans Cell Histiocytosis years ago. I have been fighting against my disease and am on chemotherapy.There are so many other people who struggle with rare diseases in the world, but I have never met another person with a rare disease except for through the web.We would love for you to help us spread the word and connect people with rare diseases.
Shintaro Nakagawa Patinet and Founder
Our solution would answer these issues by :
- collecting and providing data about rare diseases, and centralising the information in one place.
- providing near real time feedback about old, and most importantly, new treatments for rare diseases.
- enabling patients suffering from rare diseases to easily research about their condition and possible treatments even before finding a specialised doctor.
- creating a mean for specialists and patients to communicate easily (advice etc.).
- making effective data accumulation and discover the therapy that suits an individual by performing data mining.
Medical data mining
People Behind Dr.NEAR
Founder & Patint
Co-founder & developer